I expected to be diagnosed with breast cancer ever since my identical twin sister Karen started treatment for the disease seven years ago. It was only a matter of time. And while I wasnt happy to hear the words, I felt ready for the fightagain.
You see, Ive been diagnosed with cancer beforea rare, incurable blood cancer called multiple myeloma, and I wasnt expected to live more than three years. That was more than 20 years ago. Since then, Ive become a healthcare pro who shepherds patients through the system to find their cures. So when a small spot on one of my regular screenings turned out to be early stage breast cancer, I said to myself: Ive got this, its what I do. No problem.
But as I painfully re-learned with my second cancer diagnosis, cancer can be humbling. Even for a cancer expert. Even for someone who has been through this before.
When I first started battling cancer decades ago, I didnt know what I know now. But after years of research, difficult decisions and grueling treatmentsinduction therapy, chemo, stem cell transplant with my sister, maintenance therapy, relapse, infusions, side effectsI learned a fair amount about how to beat cancer. I also gained a great deal of hard-won wisdom about how the disease burdens friends and family along the way. Mine were there for me no matter how difficult the treatment, or the patient. And I could be difficult. No one knows that better than my sister.
Karen was my first call after being diagnosed with myeloma. She calmed me down when my test results were bad and bore my rage when I vented Why me? And then, when my myeloma became active and aggressive, she became my stem cell donor.
Then in 2014, eight years after giving me the life-saving gift of a stem cell transplant, Karen was diagnosed with breast cancer. Stage III. It was my turn to pay her back.
Together, we searched the internet, called every doctor and patient group, read every medical publication. Again, many decisions and years of debilitating treatments: surgery, chemo, radiation, and at least five years on therapy. Even today, she still warriors through the scans, the test results, the fear.
So how would I address my new diagnosis? I followed my tried-and true playbook, the one Id used with my sister and refined with an untold number of other patients: Google wisely, get a second opinion, find the right team, check your coverage, and always ask for the most current tests and treatments. My doctor laid out the options and encouraged me to speak with other doctors. One said low-dose tamoxifen. Another said lumpectomy, with treatment and/or radiation. Another said double mastectomy: You spent 20 years of your life trying to cure one disease; in one fell swoop you can cure this one. In the end I had all the data and science in the world. But no clear answer. The decision would be mine. The decision would be personal.
I reached out to family, to friends. My sister and I spoke endlessly about the toll of her ongoing treatment, from shortness of breath to the neuropathy that feels like shooting needles in her feet; having endured years of treatment issues myself for myeloma, I didnt know how many more I could bear, let alone more scans, more false positives, more biopsies. More restless nights and honest entries in my journal.
I spoke with friends about the burden I had put on them. On my husband, my children. Id been riding the cancer roller coaster for 25-plus years. I wanted off. And besides, having lived through a stem cell transplant, I figured double mastectomy would be easy (despite my doctors warning otherwise). Surgery on Tuesday, Moms birthday on Sunday, back to work on Monday. I put make-up on before surgery so I would look bright and healthy in a quick photo sent off to our children. This time I wouldnt burden anyone.
I was wrong. The surgery was harder than I imagined. I dont know how I could have managed without my friends to bring my favorite ginger tea, my kids to cook and walk the dog when I still couldnt hold the leash, my husband to drive me 90 minutes to each appointment, sit in with the doctor, and give me (very gentle) hugs when I needed them, and my sister to just agree it suckedno sense sugar-coating. And then there were the Zoom calls. Putting on my game face when I could barely reach for my lip gloss and concealer. Going into surgery I felt strong, in control. Coming out, I felt small. Full of doubts. Beaten up.
Sitting in her office a week later, I asked my doctor if Id made the right decision. Her response: There is no wrong answer, there is only the right answer for you.
After more than 25 years of curing my own cancer, and advising countless others how to cure theirs, heres what I know now about cancer:
My someones make me know I chose rightfor me. Thats what friends and family do. They are your sounding board to help you decide, and then they give unconditional support for that decision, and see you through no matter how hard the journey might be. Their comfort is your cure.
When facing cancer, even a cancer expert needs help.
This content is created and maintained by a third party, and imported onto this page to help users provide their email addresses. You may be able to find more information about this and similar content at piano.io
Here is the original post:
I've Been Diagnosed with Cancer TwiceThese Are the Lessons I've Learned - Prevention Magazine
- SIRA: Could Stem Cell Therapy Renew Your Body Cells? - Private ... [Last Updated On: April 23rd, 2011] [Originally Added On: April 23rd, 2011]
- Stem Cell Series: Part 1 [Last Updated On: August 4th, 2011] [Originally Added On: August 4th, 2011]
- Huntington's Disease: Stem Cell Treatment Strategies at UC Davis [Last Updated On: August 4th, 2011] [Originally Added On: August 4th, 2011]
- Tianjin heart hospital the largest in Asia with stem cell treatment as well.mp4 [Last Updated On: August 4th, 2011] [Originally Added On: August 4th, 2011]
- Researchers hope stem cell treatment can improve heart healing [Last Updated On: August 4th, 2011] [Originally Added On: August 4th, 2011]
- Testimonial for Fetal Stem Cell Treatment of Duchenne Muscular Dystrophy [Last Updated On: August 5th, 2011] [Originally Added On: August 5th, 2011]
- MS Views and News Podcast - Stem Cell Treatment [Last Updated On: August 6th, 2011] [Originally Added On: August 6th, 2011]
- Duchenne's Muscular Dystrophy Stem Cell Treatment - Reelabs India [Last Updated On: August 7th, 2011] [Originally Added On: August 7th, 2011]
- Stem cell treatment for Macular Degeneration - Graham Leach [Last Updated On: August 7th, 2011] [Originally Added On: August 7th, 2011]
- The New World of Medicine: Stem Cell Therapy [Last Updated On: August 8th, 2011] [Originally Added On: August 8th, 2011]
- Stem Cell Treatment for Cerebral Palsy (Periventricular Leukomalacia) [Last Updated On: August 8th, 2011] [Originally Added On: August 8th, 2011]
- Medra Inc - Breakthrough Stem Cell Treatment [Last Updated On: August 9th, 2011] [Originally Added On: August 9th, 2011]
- Patricia VS Autism: Adult Stem Cell Treatment Part 1 [Last Updated On: August 10th, 2011] [Originally Added On: August 10th, 2011]
- Stem Cell Treatment for Multiple Sclerosis - Community Outreach San Diego: Xenia C. [Last Updated On: August 10th, 2011] [Originally Added On: August 10th, 2011]
- Stem Cell Treatment for Cerebral Palsy at the XCell-Center in Germany [Last Updated On: August 11th, 2011] [Originally Added On: August 11th, 2011]
- Bone Marrow Aspiration - Stem Cell Therapy [Last Updated On: August 13th, 2011] [Originally Added On: August 13th, 2011]
- Dr. William Rader - Breakthrough Stem Cell Treatment [Last Updated On: August 13th, 2011] [Originally Added On: August 13th, 2011]
- Clinical Advances in Adult Stem Cell Therapy - Dr. Jorge Paz Rodriguez (Miami) [Last Updated On: August 14th, 2011] [Originally Added On: August 14th, 2011]
- Stem cell treatment on horse a success, vet says [Last Updated On: August 15th, 2011] [Originally Added On: August 15th, 2011]
- Patricia VS Autism: Adult Stem Cell Treatment Part 2 [Last Updated On: August 15th, 2011] [Originally Added On: August 15th, 2011]
- Adult Stem Cell Therapy Clinical Advances - Dr. Jorge Paz in San Diego, CA March 2011 [Last Updated On: August 17th, 2011] [Originally Added On: August 17th, 2011]
- Dr. Ulrich Friedrichson, Geneticist, and Stem Cell Therapy pioneer [Last Updated On: August 19th, 2011] [Originally Added On: August 19th, 2011]
- Bone Marrow Stem Cells/Gene Therapy [Last Updated On: August 19th, 2011] [Originally Added On: August 19th, 2011]
- Regenerative Medicine With Stem Cell Therapy Injections at an Arizona pain clinic (602) 507-6550 [Last Updated On: August 19th, 2011] [Originally Added On: August 19th, 2011]
- Diabetes - Stem Cell Treatment [Last Updated On: August 21st, 2011] [Originally Added On: August 21st, 2011]
- Stem Cell Treatments for Autism: Community Outreach Miami, Florida - Juliana Ubinas [Last Updated On: August 22nd, 2011] [Originally Added On: August 22nd, 2011]
- Post Stem Cell Therapy Testimony of Cerebral Palsy [Last Updated On: August 26th, 2011] [Originally Added On: August 26th, 2011]
- VetCell's StemRegen - the original and best stem cell therapy for equine tendon injuries [Last Updated On: August 26th, 2011] [Originally Added On: August 26th, 2011]
- Stem cell treatment cures blind girl. More at http://www.stemcellfusion.com [Last Updated On: August 30th, 2011] [Originally Added On: August 30th, 2011]
- ALS Patient Interview, Stem Cell Treatments and ALS www.stemcellregenmed.com [Last Updated On: September 1st, 2011] [Originally Added On: September 1st, 2011]
- Stem Cell Treatment for Rheumatoid Arthritis - "I got my life back" [Last Updated On: September 1st, 2011] [Originally Added On: September 1st, 2011]
- Stem Cell Treatment for Autism: Community Outreach Miami, Florida - May 2011 [Last Updated On: September 2nd, 2011] [Originally Added On: September 2nd, 2011]
- Rylea returns home after stem cell treatment in China [Last Updated On: September 3rd, 2011] [Originally Added On: September 3rd, 2011]
- Stem Cell Treatments and ALS - www.StemCellRegenMed.com [Last Updated On: September 4th, 2011] [Originally Added On: September 4th, 2011]
- Patient with ALS Receiving Stem Cell Treatment - www.StemCellRegenMed.com [Last Updated On: September 5th, 2011] [Originally Added On: September 5th, 2011]
- Stem Cell Therapy Success [Last Updated On: September 6th, 2011] [Originally Added On: September 6th, 2011]
- Lisa Ray Opens Up About Her Stem Cell Treatment Experience [Last Updated On: September 17th, 2011] [Originally Added On: September 17th, 2011]
- Repair Your Joint Injuries With Stem Cell Therapy | Los Angeles | Beverly Hills | Hollywood [Last Updated On: September 18th, 2011] [Originally Added On: September 18th, 2011]
- What could stem cell therapy do for Peyton? [Last Updated On: September 21st, 2011] [Originally Added On: September 21st, 2011]
- Peyton Manning Stem Cell Therapy: Some Doctors Cry Foul Over European Treatment [Last Updated On: September 22nd, 2011] [Originally Added On: September 22nd, 2011]
- Adickes: Stem cell therapy [Last Updated On: September 27th, 2011] [Originally Added On: September 27th, 2011]
- Webinar 1, Stem cell therapy basics, what is available today? [Last Updated On: September 30th, 2011] [Originally Added On: September 30th, 2011]
- Stem Cell Treatment for Leukemia at UCH [Last Updated On: October 5th, 2011] [Originally Added On: October 5th, 2011]
- Testimonial 4 of Duchenne Muscular Dystrophy after Stem Cell Therapy [Last Updated On: October 6th, 2011] [Originally Added On: October 6th, 2011]
- The Spinal Cord Journey - Stem cell therapy stories from three spinal cord injury patients [Last Updated On: October 6th, 2011] [Originally Added On: October 6th, 2011]
- Parkinson Stem Cell Treatment [Last Updated On: October 7th, 2011] [Originally Added On: October 7th, 2011]
- " Embryonic" and "Adult" Stem Cell Research explained by David Kupelian [Last Updated On: October 11th, 2011] [Originally Added On: October 11th, 2011]
- Stem Cell Treatment for Heart Failure [Last Updated On: October 12th, 2011] [Originally Added On: October 12th, 2011]
- Stem Cell Therapy for Sickle Cell Anemia - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- Stem Cell Therapy Skin Repair and Anti-Wrinkle Cream - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- Stem Cell Treatment for Multiple Sclerosis - Community Outreach, San Diego: David Oliver - Video [Last Updated On: October 15th, 2011] [Originally Added On: October 15th, 2011]
- Spinal Cord Injury Patient after Stem Cell Treatment - Juan Carlos Murillo - Video [Last Updated On: October 16th, 2011] [Originally Added On: October 16th, 2011]
- Macular degeneration - Stem Cell therapy (English subtitles) - Video [Last Updated On: October 18th, 2011] [Originally Added On: October 18th, 2011]
- stem cell research - Video [Last Updated On: October 18th, 2011] [Originally Added On: October 18th, 2011]
- Diabetes- Stem cell therapy (english) - Video [Last Updated On: October 19th, 2011] [Originally Added On: October 19th, 2011]
- First Spinal-Cord Surgery With Stem Cells - Video [Last Updated On: October 21st, 2011] [Originally Added On: October 21st, 2011]
- The Skin Gun - Video [Last Updated On: October 23rd, 2011] [Originally Added On: October 23rd, 2011]
- Heart Congestion Failure- stem cell therapy (english) - Video [Last Updated On: October 24th, 2011] [Originally Added On: October 24th, 2011]
- Improvement seen in Duchenne Muscular Dystrophy after Stem Cell Therapy - Video [Last Updated On: October 24th, 2011] [Originally Added On: October 24th, 2011]
- Joseph, Friedreich's Ataxia, before stem cell treatment at Tiantan Puhua Hospital Beijing - Video [Last Updated On: October 25th, 2011] [Originally Added On: October 25th, 2011]
- Ataxia - Stem Cell Treatment TV Special (Part 1) - Video [Last Updated On: October 25th, 2011] [Originally Added On: October 25th, 2011]
- COPD and Stem Cell Treatments - www.StemCellRegenMed.com - Video [Last Updated On: October 26th, 2011] [Originally Added On: October 26th, 2011]
- Rheumatoid Arthritis Stem Cell Treatment - Video [Last Updated On: October 27th, 2011] [Originally Added On: October 27th, 2011]
- Stem Cells Repair Joint Cartilage - Video [Last Updated On: October 27th, 2011] [Originally Added On: October 27th, 2011]
- Soon stem cell cure for hearing loss - Video [Last Updated On: October 27th, 2011] [Originally Added On: October 27th, 2011]
- Extra: The Promise of Stem Cell Treatment - Video [Last Updated On: October 28th, 2011] [Originally Added On: October 28th, 2011]
- Batten Disease: Spotlight on Stem Cell Research - A Father's Story - Video [Last Updated On: October 28th, 2011] [Originally Added On: October 28th, 2011]
- Stem cell treatment by Adiva Health Care India after Spinal Cord Injury - Video [Last Updated On: October 29th, 2011] [Originally Added On: October 29th, 2011]
- Macular Degeneration: Spotlight on Stem Cell Research - Mark Humayun - Video [Last Updated On: October 29th, 2011] [Originally Added On: October 29th, 2011]
- Stem Cells to Treat Acne Scarring | Los Angeles | Hollywood | Beverly Hills - Video [Last Updated On: October 30th, 2011] [Originally Added On: October 30th, 2011]
- Stem Cell Treatment Kidney Failure - Video [Last Updated On: November 5th, 2011] [Originally Added On: November 5th, 2011]
- Stem Cell Miracle From Cord Blood - Video [Last Updated On: November 7th, 2011] [Originally Added On: November 7th, 2011]
- Stem Cell Therapy: Psoriatic Arthritis Treatment - Video [Last Updated On: November 8th, 2011] [Originally Added On: November 8th, 2011]
- Deafness: Spotlight on Stem Cell Research - Karen Doyle - Video [Last Updated On: November 9th, 2011] [Originally Added On: November 9th, 2011]
- Daniel Deeter Testimonial for Fetal Stem Cell Treatment at Kyiv, Ukraine - Video [Last Updated On: November 12th, 2011] [Originally Added On: November 12th, 2011]
- Stem Cell Treatment Fibromyalgia - Video [Last Updated On: November 13th, 2011] [Originally Added On: November 13th, 2011]
- Stem Cell Treatment Kidney Disease - Video [Last Updated On: November 14th, 2011] [Originally Added On: November 14th, 2011]
- Heart patient sees results in stem cell study - Video [Last Updated On: November 15th, 2011] [Originally Added On: November 15th, 2011]
- Heart health: Patient's own stem cells repaired damage - Video [Last Updated On: November 15th, 2011] [Originally Added On: November 15th, 2011]
- StemCellTV Daily Report-November 15, 2011 - Video [Last Updated On: November 16th, 2011] [Originally Added On: November 16th, 2011]