Boca Raton parents Gary and Judy Susser say they know the hope and promise of stem-cell therapy. Nine years ago they traveled to Mexico for stem cell injections for their son Adam, who has cerebral palsy.
"Maybe it will do some good," Gary Susser said he and his wife thought at the time. They spent $25,000.
But the Sussers stopped stem cell injections in 2005, after spending about $25,000 and seeing no improvement. Now armed with more information, the Sussers are grateful the treatments didn't harm Adam, now 12. While they are advocates of "responsible" stem cell research, they warn other parents against making trips to Costa Rica, Mexico, Russia or other offshore clinics for experimental treatments.
With promising breakthroughs making the news, as well as Internet hype, desperate parents and seriously ill patients may look to stem-cell therapy as the modern miracle that could cure them. And one day, stem cells may be routinely used to repair damaged cells, improve the treatment of diseases and even cure paralysis.
But there are hidden dangers to today's stem cell treatments, both in the U.S. and offshore, scientists said at the recent World Stem Cell Summit in West Palm Beach. They pointed to reports of deaths, tumors, lumbar punctures and other potential harm, as well as vulnerable people being conned out of thousands of dollars.
Patients are "buying hope," said University of Miami scientist James Guest, working on The Miami Project to Cure Paralysis. But he and other scientists say that responsible research takes years to complete. The Miami Project, in the making for 25 years, is just now reaching the human clinical trial stage, he says.
Scientists urge consumers look for regulated clinical trials at universities and research institutions, saying that even those are not without risks.
"Clinics are operating out of loopholes, a gray area disguised as the practice of medicine," said George Q. Daley, director of the stem cell transplantation program at HHMI/Children's Hospital in Boston.
Industry researcher Douglas Sipp has kept records of more than 400 companies advertising stem cell products or procedures on websites since 2007. When he rechecked this summer, Sipp said 80 of the sites were no longer online, though they could have simply changed web addresses.
Some of the offshore clinics have been closed by individual countries after patients died, according to Sipp, who leads the research unit for Science Policy and Ethics Studies at the RIKEN Center in Japan.
See original here:
Patients seek stem-cell 'miracle,' but scientists warn of dangers
- SIRA: Could Stem Cell Therapy Renew Your Body Cells? - Private ... [Last Updated On: April 23rd, 2011] [Originally Added On: April 23rd, 2011]
- Stem Cell Series: Part 1 [Last Updated On: August 4th, 2011] [Originally Added On: August 4th, 2011]
- Huntington's Disease: Stem Cell Treatment Strategies at UC Davis [Last Updated On: August 4th, 2011] [Originally Added On: August 4th, 2011]
- Tianjin heart hospital the largest in Asia with stem cell treatment as well.mp4 [Last Updated On: August 4th, 2011] [Originally Added On: August 4th, 2011]
- Researchers hope stem cell treatment can improve heart healing [Last Updated On: August 4th, 2011] [Originally Added On: August 4th, 2011]
- Testimonial for Fetal Stem Cell Treatment of Duchenne Muscular Dystrophy [Last Updated On: August 5th, 2011] [Originally Added On: August 5th, 2011]
- MS Views and News Podcast - Stem Cell Treatment [Last Updated On: August 6th, 2011] [Originally Added On: August 6th, 2011]
- Duchenne's Muscular Dystrophy Stem Cell Treatment - Reelabs India [Last Updated On: August 7th, 2011] [Originally Added On: August 7th, 2011]
- Stem cell treatment for Macular Degeneration - Graham Leach [Last Updated On: August 7th, 2011] [Originally Added On: August 7th, 2011]
- The New World of Medicine: Stem Cell Therapy [Last Updated On: August 8th, 2011] [Originally Added On: August 8th, 2011]
- Stem Cell Treatment for Cerebral Palsy (Periventricular Leukomalacia) [Last Updated On: August 8th, 2011] [Originally Added On: August 8th, 2011]
- Medra Inc - Breakthrough Stem Cell Treatment [Last Updated On: August 9th, 2011] [Originally Added On: August 9th, 2011]
- Patricia VS Autism: Adult Stem Cell Treatment Part 1 [Last Updated On: August 10th, 2011] [Originally Added On: August 10th, 2011]
- Stem Cell Treatment for Multiple Sclerosis - Community Outreach San Diego: Xenia C. [Last Updated On: August 10th, 2011] [Originally Added On: August 10th, 2011]
- Stem Cell Treatment for Cerebral Palsy at the XCell-Center in Germany [Last Updated On: August 11th, 2011] [Originally Added On: August 11th, 2011]
- Bone Marrow Aspiration - Stem Cell Therapy [Last Updated On: August 13th, 2011] [Originally Added On: August 13th, 2011]
- Dr. William Rader - Breakthrough Stem Cell Treatment [Last Updated On: August 13th, 2011] [Originally Added On: August 13th, 2011]
- Clinical Advances in Adult Stem Cell Therapy - Dr. Jorge Paz Rodriguez (Miami) [Last Updated On: August 14th, 2011] [Originally Added On: August 14th, 2011]
- Stem cell treatment on horse a success, vet says [Last Updated On: August 15th, 2011] [Originally Added On: August 15th, 2011]
- Patricia VS Autism: Adult Stem Cell Treatment Part 2 [Last Updated On: August 15th, 2011] [Originally Added On: August 15th, 2011]
- Adult Stem Cell Therapy Clinical Advances - Dr. Jorge Paz in San Diego, CA March 2011 [Last Updated On: August 17th, 2011] [Originally Added On: August 17th, 2011]
- Dr. Ulrich Friedrichson, Geneticist, and Stem Cell Therapy pioneer [Last Updated On: August 19th, 2011] [Originally Added On: August 19th, 2011]
- Bone Marrow Stem Cells/Gene Therapy [Last Updated On: August 19th, 2011] [Originally Added On: August 19th, 2011]
- Regenerative Medicine With Stem Cell Therapy Injections at an Arizona pain clinic (602) 507-6550 [Last Updated On: August 19th, 2011] [Originally Added On: August 19th, 2011]
- Diabetes - Stem Cell Treatment [Last Updated On: August 21st, 2011] [Originally Added On: August 21st, 2011]
- Stem Cell Treatments for Autism: Community Outreach Miami, Florida - Juliana Ubinas [Last Updated On: August 22nd, 2011] [Originally Added On: August 22nd, 2011]
- Post Stem Cell Therapy Testimony of Cerebral Palsy [Last Updated On: August 26th, 2011] [Originally Added On: August 26th, 2011]
- VetCell's StemRegen - the original and best stem cell therapy for equine tendon injuries [Last Updated On: August 26th, 2011] [Originally Added On: August 26th, 2011]
- Stem cell treatment cures blind girl. More at http://www.stemcellfusion.com [Last Updated On: August 30th, 2011] [Originally Added On: August 30th, 2011]
- ALS Patient Interview, Stem Cell Treatments and ALS www.stemcellregenmed.com [Last Updated On: September 1st, 2011] [Originally Added On: September 1st, 2011]
- Stem Cell Treatment for Rheumatoid Arthritis - "I got my life back" [Last Updated On: September 1st, 2011] [Originally Added On: September 1st, 2011]
- Stem Cell Treatment for Autism: Community Outreach Miami, Florida - May 2011 [Last Updated On: September 2nd, 2011] [Originally Added On: September 2nd, 2011]
- Rylea returns home after stem cell treatment in China [Last Updated On: September 3rd, 2011] [Originally Added On: September 3rd, 2011]
- Stem Cell Treatments and ALS - www.StemCellRegenMed.com [Last Updated On: September 4th, 2011] [Originally Added On: September 4th, 2011]
- Patient with ALS Receiving Stem Cell Treatment - www.StemCellRegenMed.com [Last Updated On: September 5th, 2011] [Originally Added On: September 5th, 2011]
- Stem Cell Therapy Success [Last Updated On: September 6th, 2011] [Originally Added On: September 6th, 2011]
- Lisa Ray Opens Up About Her Stem Cell Treatment Experience [Last Updated On: September 17th, 2011] [Originally Added On: September 17th, 2011]
- Repair Your Joint Injuries With Stem Cell Therapy | Los Angeles | Beverly Hills | Hollywood [Last Updated On: September 18th, 2011] [Originally Added On: September 18th, 2011]
- What could stem cell therapy do for Peyton? [Last Updated On: September 21st, 2011] [Originally Added On: September 21st, 2011]
- Peyton Manning Stem Cell Therapy: Some Doctors Cry Foul Over European Treatment [Last Updated On: September 22nd, 2011] [Originally Added On: September 22nd, 2011]
- Adickes: Stem cell therapy [Last Updated On: September 27th, 2011] [Originally Added On: September 27th, 2011]
- Webinar 1, Stem cell therapy basics, what is available today? [Last Updated On: September 30th, 2011] [Originally Added On: September 30th, 2011]
- Stem Cell Treatment for Leukemia at UCH [Last Updated On: October 5th, 2011] [Originally Added On: October 5th, 2011]
- Testimonial 4 of Duchenne Muscular Dystrophy after Stem Cell Therapy [Last Updated On: October 6th, 2011] [Originally Added On: October 6th, 2011]
- The Spinal Cord Journey - Stem cell therapy stories from three spinal cord injury patients [Last Updated On: October 6th, 2011] [Originally Added On: October 6th, 2011]
- Parkinson Stem Cell Treatment [Last Updated On: October 7th, 2011] [Originally Added On: October 7th, 2011]
- " Embryonic" and "Adult" Stem Cell Research explained by David Kupelian [Last Updated On: October 11th, 2011] [Originally Added On: October 11th, 2011]
- Stem Cell Treatment for Heart Failure [Last Updated On: October 12th, 2011] [Originally Added On: October 12th, 2011]
- Stem Cell Therapy for Sickle Cell Anemia - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- Stem Cell Therapy Skin Repair and Anti-Wrinkle Cream - Video [Last Updated On: October 14th, 2011] [Originally Added On: October 14th, 2011]
- Stem Cell Treatment for Multiple Sclerosis - Community Outreach, San Diego: David Oliver - Video [Last Updated On: October 15th, 2011] [Originally Added On: October 15th, 2011]
- Spinal Cord Injury Patient after Stem Cell Treatment - Juan Carlos Murillo - Video [Last Updated On: October 16th, 2011] [Originally Added On: October 16th, 2011]
- Macular degeneration - Stem Cell therapy (English subtitles) - Video [Last Updated On: October 18th, 2011] [Originally Added On: October 18th, 2011]
- stem cell research - Video [Last Updated On: October 18th, 2011] [Originally Added On: October 18th, 2011]
- Diabetes- Stem cell therapy (english) - Video [Last Updated On: October 19th, 2011] [Originally Added On: October 19th, 2011]
- First Spinal-Cord Surgery With Stem Cells - Video [Last Updated On: October 21st, 2011] [Originally Added On: October 21st, 2011]
- The Skin Gun - Video [Last Updated On: October 23rd, 2011] [Originally Added On: October 23rd, 2011]
- Heart Congestion Failure- stem cell therapy (english) - Video [Last Updated On: October 24th, 2011] [Originally Added On: October 24th, 2011]
- Improvement seen in Duchenne Muscular Dystrophy after Stem Cell Therapy - Video [Last Updated On: October 24th, 2011] [Originally Added On: October 24th, 2011]
- Joseph, Friedreich's Ataxia, before stem cell treatment at Tiantan Puhua Hospital Beijing - Video [Last Updated On: October 25th, 2011] [Originally Added On: October 25th, 2011]
- Ataxia - Stem Cell Treatment TV Special (Part 1) - Video [Last Updated On: October 25th, 2011] [Originally Added On: October 25th, 2011]
- COPD and Stem Cell Treatments - www.StemCellRegenMed.com - Video [Last Updated On: October 26th, 2011] [Originally Added On: October 26th, 2011]
- Rheumatoid Arthritis Stem Cell Treatment - Video [Last Updated On: October 27th, 2011] [Originally Added On: October 27th, 2011]
- Stem Cells Repair Joint Cartilage - Video [Last Updated On: October 27th, 2011] [Originally Added On: October 27th, 2011]
- Soon stem cell cure for hearing loss - Video [Last Updated On: October 27th, 2011] [Originally Added On: October 27th, 2011]
- Extra: The Promise of Stem Cell Treatment - Video [Last Updated On: October 28th, 2011] [Originally Added On: October 28th, 2011]
- Batten Disease: Spotlight on Stem Cell Research - A Father's Story - Video [Last Updated On: October 28th, 2011] [Originally Added On: October 28th, 2011]
- Stem cell treatment by Adiva Health Care India after Spinal Cord Injury - Video [Last Updated On: October 29th, 2011] [Originally Added On: October 29th, 2011]
- Macular Degeneration: Spotlight on Stem Cell Research - Mark Humayun - Video [Last Updated On: October 29th, 2011] [Originally Added On: October 29th, 2011]
- Stem Cells to Treat Acne Scarring | Los Angeles | Hollywood | Beverly Hills - Video [Last Updated On: October 30th, 2011] [Originally Added On: October 30th, 2011]
- Stem Cell Treatment Kidney Failure - Video [Last Updated On: November 5th, 2011] [Originally Added On: November 5th, 2011]
- Stem Cell Miracle From Cord Blood - Video [Last Updated On: November 7th, 2011] [Originally Added On: November 7th, 2011]
- Stem Cell Therapy: Psoriatic Arthritis Treatment - Video [Last Updated On: November 8th, 2011] [Originally Added On: November 8th, 2011]
- Deafness: Spotlight on Stem Cell Research - Karen Doyle - Video [Last Updated On: November 9th, 2011] [Originally Added On: November 9th, 2011]
- Daniel Deeter Testimonial for Fetal Stem Cell Treatment at Kyiv, Ukraine - Video [Last Updated On: November 12th, 2011] [Originally Added On: November 12th, 2011]
- Stem Cell Treatment Fibromyalgia - Video [Last Updated On: November 13th, 2011] [Originally Added On: November 13th, 2011]
- Stem Cell Treatment Kidney Disease - Video [Last Updated On: November 14th, 2011] [Originally Added On: November 14th, 2011]
- Heart patient sees results in stem cell study - Video [Last Updated On: November 15th, 2011] [Originally Added On: November 15th, 2011]
- Heart health: Patient's own stem cells repaired damage - Video [Last Updated On: November 15th, 2011] [Originally Added On: November 15th, 2011]
- StemCellTV Daily Report-November 15, 2011 - Video [Last Updated On: November 16th, 2011] [Originally Added On: November 16th, 2011]